Anaylsis 2018 – Data Publicity Statement
Principles of data use
It is our intention for the UK Health Research Analysis 2018 will use the principles defined in the previous report (2014) regarding data ownership and management. These are:
- Data collected in the course of this work is owned by the organisations funding the research and are held in confidence by the MRC, part of UKRI, on behalf of the UK Clinical Research Collaboration.
- Data owners agree to allow data sets to be made available online to facilitate further analysis (see our Submission Guidance for specific details).
- Further details of individual awards will not be circulated or published without agreement from the participating organisations.
- Any further analyses must be fully acknowledged and cited to the UKCRC (see below).
- Any further analyses abide by the HRCS conditions of use (see below).
By submitting data for this report, organisations will be agreeing to these underlying principles of data publicity.
In addition, we have prepared a longer explanation of why we ask for award data to be made public, which can be found within our FAQ page. In addition, we explain the uses of each data field we ask for as part of the submission guidance.
Acknowledging use of this data
As with all previous HRCS reports, this data is made available on the condition that the UKCRC is acknowledged in any publication using the citation “Data taken from the UK Health Research Analysis 2018 (UK Clinical Research Collaboration, 2019)” and include a hyperlink to the 2018 report on the HRCS website.
The UK charity and public sector funding organisations that provided this data are interested in any work which makes use of the information. This feedback will be helpful in making the case to continue to compile data. You can let the UKCRC know that you are using the data via the HRCS website.
HRCS: Conditions of use
The Health Research Classification System itself is open source. You are free to use and distribute the HRCS but you should not alter it or use it for commercial benefit.
Accordingly, all content on the HRCS website, including supporting documentation, is licensed for use under a Creative Commons Attribution-NonCommercial-NoDerivs 2.0 England & Wales Licence.
The MRC and information requests
It is important for all participatory organisations to take note that this project is coordinated and managed by the MRC. As such, the project falls under the same data principles as other MRC work. Please note the data ownership is retained by the funding organisation that provided it.
All information managed by the MRC and the other research councils are kept in line with the principles of the Data Protection Act 2018. As a public body the MRC, as part of UKRI, is also subject to the Freedom of Information Act (2000). Should we receive any requests for information relating to the HRCS project which are not already publicly available, the MRC will aim to consult with the data owners as soon as possible when considering how to respond. The MRC will never publicise data that is owned by another organisation without that organisation’s approval. Please see this website’s data protection page for more details.
The MRC has a policy of publication of all MRC awards via Gateway to Research, which includes award details such as PI names, organisations, abstracts, values and outcomes. In addition, as with other large funders, the MRC links its award funding with publications via Europe PubMed Central. Further details of these two methods of publication are available in Annex 1. Please note this relates to MRC awards only, and it is not our intention to publish other funders awards in this manner. This information is included here to as an example of how award information enters the public domain.
Annex 1 – Gateway to Research and Europe PubMed Central
Publishing information in the UKRI Gateway to Research
The UKRI Gateway to Research provides access to information on all UKRI funded awards, this includes:
- the names of the investigators and research organisations
- the project tile, abstracts and technical summary (where available), impact summary
- the total value and duration of the award(s)
- outcomes and publications
The gateway is open for anyone to search, download and use data in line with the Open Government Licence v2.0, except where otherwise stated. See the pages on data and the data dictionary for further information on output data made available via the gateway.
Sharing links with Europe PubMed Central
Europe PubMed Central is a stable, permanent and free-to-access digital archive of the full text, peer-reviewed research publications (and datasets) that arise from research funded by the MRC, the Wellcome Trust and other members of the Europe PMC Funders Group.
Links between publications and UKRI funding will be shared across the Europe PubMed Central and Researchfish datasets to reduce duplicate requests to researchers and duplicate reporting.
Information on publications submitted to Researchfish may be copied into Europe PubMed Central and links established in Europe PubMed Central or extracted from publication acknowledgements may be copied into Researchfish.