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UKCRC Health Research Classification System

7.2 End of life care

Main inclusion criteria

Studies involving all issues related to palliative care and end of life care including:

  • assessment of patient, service user and carer needs
  • provision and evaluation of palliative and end of life care services
  • quality of life for patients and carers
  • evaluation of interventions for health and social care professionals
  • social, economic and policy issues
  • pain management for terminally ill people
  • bereavement

 

Official terminology

Full name of code

Short name Unique ID
7.2 End of life care 7.2 Palliative

HRCS_RA_7_2

 

Related external links

Common Scientific Outline (CSO) – 6.6 End of Life Care
 

Main inclusion criteria

Studies of patients and service user care needs including:

  • quality of life, management of acute and chronic symptoms, management of side effects, rehabilitation, long term morbidity and reproductive issues
  • psychological impact of illness
  • social and economic consequences of ill health
  • behaviour affecting disease management including secondary prevention, compliance to treatment and attitudes and beliefs relating to seeking treatment
  • assessment of social care and health services needs
  • educational or communication interventions to promote self-care or improve health care by carers
  • impact on carers

 

Advice on research activities

Includes research into or promoting management of diseases or conditions by service users such as user education and communication research.

Excludes services users experiences of health services which should be coded as 8.1 Organisation and delivery of services.

Do not use to code for the quality of life component of a therapeutic trial – code for the therapeutic investigation only.
 

Official terminology

Full name of code

Short name Unique ID
7.1 Individual care needs 7.1 Individual needs

HRCS_RA_7_1

 

Related external links

Common Scientific Outline (CSO) – 6.1 Patient Care and Survivorship Issues
Common Scientific Outline (CSO) – 6.3 Population-based Behaviour Factors
 

Advice on research activities

Therapeutic clinical trials in the 6 Treatment Evaluation code group will often include an assessment of quality of life. However the main aim of these studies is usually to evaluate the effect or suitability of the intervention.

Unless one of the primary aims of a trial is investigating quality of life, just code for the therapy under investigation and not also to 7.1 Individual care needs for the quality of life component.

The 7.1 individual care needs code should only be used for research where assessments of quality of life are the main focus of the study.

 

Main inclusion criteria

Testing and evaluation of therapeutic interventions in clinical, community or applied settings.
 

Advice on research activities

Research coded within this code group should involve patients in the testing and evaluation of therapies or be in a clinical or applied setting.

Note not all trial evaluation is in 6 Treatment Evaluation, only if the trial relates to treatment evaluation.

Clinical trials in this category will often involve an economic evaluation and quality of life component. Unless one of the primary aims of these trials is assessing quality of life or health economics, just code for the therapy under investigation.
 

Official terminology

Full name of code

Short name Unique ID
6 Evaluation of treatments and therapeutic interventions 6 Treatment evaluation

HRCS_RAG_6

 

Related external links

Common Scientific Outline (CSO) – 5 Treatment
 

Summary of Treatment Evaluation sub-codes

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